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| Hello Friends, How's it going?? Usually my posts are light in nature but, today I feel it's important to reach out to you all. I know you have big hearts and Jacobs family really needs prayers....prayers for Jacob to heal without surgery. |
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| Meet Jacob who just turned 8 years old and he has ADL (adrenoleuko dystrophy). The good news that Jacob's family found out about his disease early. The hard news that the ADL was discovered because his older brother Eric, also had ALD and they found out too late for Eric. In November 2011, Jacob had a bone marrow transplant in the hopes of stopping this disease and he's still counting the days until he can come home especially since he's been in the hospital about 8 months?? |
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and here is the newest photo from yesterday.....breaks my heart. You can read about his story here. I hope you understand why I am compelled to post this photo and for the prayer request. Personally I believe in the power of prayer and this family really needs all they can get. Thank you from the bottom of my heart. Hugs, Kathy |
(ALD is an inherited recessive genetic disorder linked to the X chromosome. The 1992 movie "Lorenzo's Oil" brought this rare disorder to the world's attention.)
Jennifer McGuire had a card drive for Jacob's brother Eric if you want to check it out you can go here.
26 comments:
Oh Kathy! My youngest just turned 8 a couple weeks ago so this just broke my heart! I can't imagine the heartache for the parents...
I will keep Jacob and his family in my prayers and will pass the request along to the prayer ministry team that I'm a part of at church.
Please keep me posted, too, if you can...
Pat
I will pray for him!
Oh the poor little boy...both of them. They definitely need lots of prayers.... And there's some coming from up here to. Gees what the parents must be going thru. Bless them.
Laura
gosh, my heart is breaking after reading your post. I'll most certainly be saying lots of prayers for the entire family. thank you for sharing.
What a sad story. I will be sending up prayers for Jacob and his swift recovery. Prayers also for his family for peace and comfort and strength to deal with this trial.
So very sad. Sending prayers for Jacob and his family.
My prayers for Jacob! Faith has immense healing power and the small child has shown a strong will to live already. May he come home, hale hearty and happy. God Bless him!
Talked to God.
Paula (PEP)
Thank you for sharing, Kathy! Lifting this precious child up now and praying for his healing in the mighty name of Jesus!
I will keep Jacob and his family in my prayers. It breaks my heart to see what he and others have to go though. God bless us all.
I will keep Jacob and his family in my prayers. It breaks my heart to see what he and others have to go though. God bless us all.
I will stop and say a prayer right now. Just heart breaking!!!
oh kathy,
i remember sending cards for eric and how sad i was to learn of his passing. I am thinking of jacob too..
Praying for Jacob.
I have added Jacob and his family to my prayer list...right at the top! May God watch over him, bless him with health and strength, and fill him with life and love!
Thank you very much for sharing this Kathy! I will be praying for him and his family to!
This broke my heart. That poor baby. Jacob and his family will certainly be in my thoughts and prayers. My daughter is 12 and I cannot image what those poor parents must be going through.
I will certainly pray for Jacob and his family. I remember this family from Jennifer's card drive. This is such a sad story and breaks my heart.
Thank you so much for posting. I am praying for wisdom and empathy for those caring for these children for encouragement for the children and their loved ones and for peace for all those touched by their story.
I will add Jacob and his family to my prayers
Kathy I will pray for Jacob and his family. I also believe in the power of prayer.
prayers being said and virtual hugs for the whole family...
My prayers for Jacob.
My son has a life-long disease, I know how it's heartbreaking...
Thank you Kathy, for bringing Jacob's story to light here. He and his family are in my prayers.
Prayers go out to both of them and their family!!! TFS even though sad story...
Yes, Kathy I remember Eric. I took part in Jennifer's card drive and was so sad to hear that he passed away. I remember making a card to send to Jacob has well, and I remember reading that the family knew that he had this same disease. I remember thinking about how awesome these people were and how courageous they must be to go through something so difficult. And now all this time as passed and I see Jacob now older and going through much the same thing. My heart breaks and tears come easily because he was little the last time I say pics of him and doing well. Yes, Kathy the power of prayer is an amazing thing, and collective prayer even greater. I will remember Jacob and his family in my prayers. I will pray for God's healing touch and for strength for each new day. For people to come along side and minister to this family in any way possible. Your such a sweetheart for caring so much and for sharing. God Bless your heart for obeying His promptings. Big Hugs sweetie.
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